CVI Society - Peeps - HIE Awareness & Support

CVI Society

Bright coloured material

CVI Society

  • Sarah Land

If any of our families have a little one with CVI (Cortical Visual Impairment), The CVI Society are looking for 2 more babies for their colour tent trial:

‘We need two more parents and babies for the dome trial then we can move forward with future research and case studies with the development of domes and tents ⛺️’
If you’re interested please join their Facebook group by clicking here and message Suzanne Little.

Just as a little extra info – colour tents (often made from brightly coloured fabric) have been used to provide a visual stimulus and cut out background distractions, with some really positive outcomes for those with CVI. You can read more about it here.

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Peeps on Twitter

It’s nice to hear that our packs have been well received. As always, sending our love and best wishes to those who get them, especially at such a difficult time with COVID restrictions. Here if we can support in any way at all 💗

Helen Large@lively_helen

Huge thanks to @PeepsHie for continuing to provide us with these amazing goodie bags for our Mums and Dads! They absolutely love them!! (Posted with permission). @SarahFullwood1 @nfish83 @jbd_01 @Boffey1 @rachaelwhitting @StockportNHS 2

If you're supporting families affected by #HIE, please get in contact if you would like our free parent packs to give out. There's also a quick referral form (for you or them to complete) to ensure we can help support in the best way possible 👉

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