Family Stories

Stories from our families

We understand that HIE can affect families in so many different ways. Our experiences may not always be the same, but having a sense of belonging, and reassurance that you aren’t on your own can be so important.

In this section you can read about other families who have been touched by HIE.

As always, if anything is a trigger, or you want a little support, please don’t hesitate to get in touch. We’re here for you.

Rupert’s Story

Chloë shares there HIE journey and the gorgeous Rupert!

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Zoey’s Story

Wendy shares her experience of HIE. Her daughter Zoey had a difficult start, but now loves Hey Duggee, our 2 cats and all her older brothers and sisters. They all dote on her. She also loves to play in the garden and go for walks in the pram.

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Happy and cheeky Jessica!

"And although we still have tough days, we have found a way to live despite it being a world away from where we thought we would be."

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HIE during Covid

Gemma shares her experience of facing the challenges of HIE and Covid restrictions. Having a baby who needs neonatal care is hard enough, but when there are restrictions in place, things get even harder.

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Meet Bohen…

Kiera shares their difficult start when Bohen experienced an HIE event...and how well he's now doing!

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Deen – defying the odds!

Emily share her story of baby Deen, born 8lbs exactly at 38+6days gestation. Deen experienced an HIE event. "He definitely knows what he wants and is aware of his emotions and has a beautiful smile and laughs."

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