HIE Awareness & Support | Peeps Charity

HIE Awareness & Support

We’re here to help – and just as every family is different, the support people need can be different. Please don’t hesitate to get in touch with us if you need anything or have any ideas. You can self-refer by completing a quick online form here. A paper copy can be downloaded here.

If you would like any of our information in a different language or format, please do not hesitate to get in touch.

Some of the things we currently do:

Provide information

We have leaflets to share with NICUs (neonatal intensive care units). This means a family starting out on their journey have access to information and support. We can also provide “parent packs”. Our packs have items in that offer a little comfort during those early days and weeks. Parents or healthcare professionals can complete the referral form. For more information click here.

Buddy / peer support

Speaking to a mum or dad who has been through the same, or similar experience, can be helpful. We can put parents in touch with a “buddy” for peer support. We’ll even throw a coffee or two in for them! We understand though that meeting up may feel a little too much for some people. We offer telephone and email contact as well.

Counselling

Peeps is run by parents and volunteers. We are always happy to lend an ear but we’re not trained professionals. If someone affected by HIE would benefit from speaking to a trained counsellor then we can support. Often EMDR therapy is recommended for those who have been through trauma. It stands for Eye Movement Desensitisation and Reprocessing. You can read more about it here.

We are currently supported by Yorkshire Psychotherapy. They are holding assessments and therapy sessions over the phone, due to the current Covid19 situation.

Funding for equipment

Having a little one can be expensive. If your child needs a little extra support the costs can really add up. We have allocated funds for equipment that isn’t available through the NHS. This includes, but isn’t restricted to, items like the Firefly GoTo seat or Splashy. You can apply for up to £500 towards the cost of equipment. We’re really proud to say that our funds are needs, not means, tested.

You can fill out the form online here, or download the application form here.

If you need any help completing the form or have any questions, please don’t hesitate to get in touch.

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New article published on HIE and Multi-Organ Dysfunction. @StanfordNeo @mcgillu @HopeforHIE

Association between multi-organ dysfunction and adverse outcome in infants with hypoxic ischemic encephalopathy https://pubmed.ncbi.nlm.nih.gov/35578019/

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