We’re here to help – and just as every family is different, the support people need can be different. Please don’t hesitate to get in touch with us if you need anything or have any ideas. You can self-refer by completing a quick online form here. A paper copy can be downloaded here.
If you would like any of our information in a different language or format, please do not hesitate to get in touch.
Some of the things we currently do:
We have free parent packs, posters and leaflets (translations available) to share with NICUs (Neonatal Intensive Care Units). This means a family starting out on their journey have access to information and support from the earliest opportunity. Families may not choose to contact us straight away, and that’s of course absolutely fine, but we believe it’s important for everyone to have the choice and knowledge of what support is available for if/when they may want it.
Our packs have items in that offer a little comfort during those early days and weeks. Healthcare professionals can request packs for their unit by clicking here.
Buddy / peer support
Speaking to a mum or dad who has been through the same, or similar experience, can be helpful. We can put parents in touch with a “buddy” for peer support. We’ll even throw a coffee or two in for them! We understand though that meeting up may feel a little too much for some people. We offer telephone and email contact as well.
Peeps is run by parents and volunteers. We are always happy to lend an ear but we’re not trained professionals. If someone affected by HIE would benefit from speaking to a trained counsellor then we can support. Often EMDR therapy is recommended for those who have been through trauma. It stands for Eye Movement Desensitisation and Reprocessing. You can read more about it here.
We are currently supported by Re-Vibe Counselling, Yorkshire Psychotherapy, and others across the UK.
If you would like to find out more, or register for support, please complete our short form by clicking here.
Funding for equipment
Having a little one can be expensive. If your child needs a little extra support the costs can really add up. We have allocated funds for equipment that isn’t available through the NHS. This includes, but isn’t restricted to, items like the Firefly GoTo seat or Splashy. You can apply for up to £500 towards the cost of equipment. We’re really proud to say that our funds are needs, not means, tested.
You can fill out the form online here, or download the application form here.
If you need any help completing the form or have any questions, please don’t hesitate to get in touch.