Research Projects
Research Projects
It’s great to hear that research is taking place to improve outcomes for those affected by H.I.E. as well as looking at new treatments and ways to reduce instances occurring in the first place.
Please see below some the research studies and trials that we are aware of and involved in. Parent / family voice is always so important, and if you’d like to be involved in any way, please do get in touch.
The NeoPACE Study
‘We would like to speak to families who would be willing to share their experiences of neonatal palliative and/or end of life care, to help us understand how we can improve support given to families across the country. Please find more information at https://www.ucl.ac.uk/womens-health/neopace or contact us neopace@ucl.ac.uk’
The DOLFIN Trial
The DOLFIN trial is looking to find out whether adding a daily nutrient (food) supplement to the milk or food of babies with H.I.E. or who are born very early can help improve their brain development, and their neurological child development (such as how they think, communicate, play and interact with others).
The DOLFIN trial is running in over 30 UK neonatal units. If your baby is receiving care in one of the neonatal units taking part in DOLFIN, they may be able to take part.
You can listen to an introduction to the DOLFIN trial here:
Find out more about the DOLFIN trial here:
Peeps on Twitter
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@CHillemand can provide advice to Peeps families about making a compensation claim for their child (and themselves) as well as getting or challenging an EHCP. This os a free service for Peeps families so please contact her if you have questions.
A reminder @CMooreSolicitor, Partner has been holding free virtual legal clinics for @PeepsHie every Thursday this month. There is one more session available tomorrow (30 January 2025). To enquire with Charlotte contact her on charlotte.moore@clmedilaw.co.uk or 07388 949953.
Can you help improve data on avoidable brain injury around the time of birth? Maternity/obstetric/neonatal/paediatric colleagues please complete/retweet this survey https://ths.im/4iLI7kY
@MidwivesRCM @RCObsGyn @BAPM_Official @RCPCHtweets @NeonatalSociety @ScotNeoNurses @NNAUK1
