Blogs Archives | Peeps

Blogs

Fancy joining our school project trial?

 8th February 2024

We’re trialling a project with a primary school who have been supporting Peeps, and would love your involvement! The idea is that we introduce “Peeps Pals” (think pen-pals!), where some of our HIEroes can share a little bit about th ...

Why we now use H.I.E.

 5th February 2024

You may have noticed over recent months we have started to use H.I.E. (with the dots in between), instead of HIE. If you’re wondering why, it’s because we introduced the Recite Me accessibility toolbar on our website. It’s brilliant ...

Want to know more about how H.I.E. affects feeding?

 21st January 2024

So do we!  Sarah Edney, a speech and language therapist and friend of Peeps, is doing a PhD on feeding outcomes following H.I.E. and what can help make feeding better and easier for families. The study is called ‘Factors Influencing Feeding Ou ...

The Manchester 10km team is growing!

 11th January 2024

Fancy celebrating with Team Peeps at the Manchester 10km this May? The group of runners, joggers and walkers is growing, and we’d love you to be part of it too. Don’t worry about going for a personal best, or being the fastest – it& ...

Meet Georgia

 5th January 2024

“Hey my name is Georgia, I’m 29 years old and I was born with H.I.E. in June 1994 resulted in pvl and quadriplegic spastic athetoid cerebral palsy and I need 24 hour support for everything that is provided by my parents and care team. I love mus ...

A date for your diary – 4th April

 4th January 2024

If you’ve got a new diary or calendar, or are getting organised for the year, make sure you pop the 4th April on as H.I.E. Awareness Day. There’ll be lots of easy (and free!) ways to get involved, and you can make such a big difference. H.I.E. is ...

What’s on in December

 27th November 2023

There’s plenty going on if you’re feeling festive! All our activities are just for H.I.E. families, and free of charge. Check out our events page for details and to register your places. We do understand that not everyone will be, or feel ...

New for 2024 – the Peeps’ Book Club

 22nd November 2023

One of our new initiatives for 2024, based on conversations and feedback from families, is an online book club. Promoting self care, and a chance to connect with other H.I.E. parents, grandparents and carers. If you’d like to be kept up to date ...

Our Coffee Pot is up and running!

 15th November 2023

Many H.I.E. families will know just how hard a lengthy or sudden hospital stay can be. Worrying about your child and helping them get better is priority, and it can feel incredibly lonely as the world outside carries on as usual. Our “coffee po ...

Welcome to the team – meet our new Trustees

 9th November 2023

We’re delighted to share that we have appointed three new Trustees to join the team at Peeps. This is due to growth of the charity, and a great opportunity to bring together different experiences, skills and backgrounds. You can read more about ...

Maternity Safety Alliance

 31st October 2023

The Maternity Safety Alliance is calling for a national public inquiry on maternity safety. It’s heartbreaking to hear when a baby has died, and even more so if it was due to care that was below standard. It’s also important to acknowledg ...

What’s on in November

 29th October 2023

Here’s our November at a glance. Please don’t hesitate to get in touch if you’d like more information on any events, or if you feel like you might benefit from a little extra support. Our counselling/trauma therapy offer continues, ...

Our Aware Bear is looking for a name!

 25th October 2023

Can you help? Our Aware Bear is looking for a name, and we’d love to hear your suggestions. They are going to help us raise awareness of H.I.E. in lots of different settings (schools, nurseries, hospitals), and will share our values too of kind ...

Could you make a difference to others on their H.I.E. journey?

 20th October 2023

We are looking for individuals that may be interested in becoming one of our Peer Support Volunteers! Are you a parent, grandparent, or have experience around H.I.E? Our Peer Support Volunteer role includes a 5-week training course prior to starting, ...

Did you know….?

 9th August 2023

We like to share what we do at Peeps, in the hope that it raises awareness and helps reach families who may benefit from support. However, there are some things you might not know we do….  Birthday bears. A Peeps teddy bear and a special card are ...

A Loss Mum’s Wish

 9th August 2023

My mind knows you are gone, but my heart does not. Every day, I wish and long for you alittle bit more then I did the day before. That maybe, if I wish for you to come back to me hard enough, we’ll make the headlines with an unexplainable mirac ...

Since we began…

 9th August 2023

Since we began…. – Over £400,000 has been received in donations and grants – we’re a small charity and this is huge. Every single £ means so much, and is carefully spent to offer the best support possible for anyone touched by H.I.E ...

Peeps turns 5!

 9th August 2023

It’s 5 years since Peeps officially registered as the only UK charity dedicated to supporting those touched by H.I.E. (Hypoxic-Ischaemic Encephalopathy) and raising awareness. Each year Peeps has grown, reaching more families and offering more supp ...

Blog post – Heidi, Mama to 22 month old warrior, Edward

 9th August 2023

“H.I.E., where do I start? H.I.E. is complex, H.I.E is different for everyone I meet. It took me one whole year to talk about HIE out loud. I had googled it in those early days in NICU, you know those days when you should be resting with your b ...

Could you be our next blogger?

 6th August 2023

It’s been a while since we put out this request but we’d love to hear from anyone with experience of HIE (whether that’s as parents, wider family members, friends, healthcare professionals, through your work or other organisations) ...

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Peeps on Twitter

A little light listening for a Saturday - a beautiful song that was gifted to Peeps by Liz explaining what H.I.E. is and sharing just some of the gorgeous families we have the privilege of being alongside #HeardOfHIE 🌻

#Neonatale #seizures and #outcomes!
- @HIE the most frequent cause of seizures, but prognosis of neonatal-onset #epilepsies was worse.
- Status epilepticus: the most predictive for adverse outcomes
@EURJPN @neo_twiter @HopeforHIE

https://www.ejpn-journal.com/article/S1090-3798(24)00007-2/abstract

Our fabulous fundraisers are up and running (see what we did there?) with their Manchester 10k support. £150 has already been generously donated and we promise that every single £ will be put to good use.

There’s time to join in if you want to be part of Team Peeps 🌻…

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