Blogs
Support us through easyfundraising…no cost to you, donations for Peeps!
Did you know that whenever you buy anything online – from your weekly shop to your annual holiday – you could be raising free donations for Peeps with easyfundraising? There are over 8,000 retailers on board ready to make a donation – including ...
Get ready for our (virtual) birthday balloon race!
In just a few weeks’ time we’ll be celebrating our “birthday” – 6 years since Peeps registered as a charity We’re doing something a little different this year to mark the occasion (keep an eye out!). We know how mu ...
So, what are our Let’s Chat sessions?
Our Let’s Chat sessions are a closed group that take place on Zoom at different times and dates throughout the year. Each session focuses on a different topic, whether that be schooling, blended diets or equipment (and much, much more). Each sessio ...
Great news for the H.I.E. community
It’s a busy day for news and significant changes across the country, and we have our own huge news to share with you. We’re celebrating after being awarded National Lottery funding to support our work with those affected by H.I.E. This is ...
Calling all foodies and artists – do you want to be involved in something exciting?
We’re cooking up something special and need YOUR help! This is a project which can involve the whole family and a great activity to keep you entertained over the upcoming summer holidays! We’re creating a community recipe book to be published a ...
Episode 6: Peeps in a Podcast – EHCPs: The Basics
This is the first of two podcasts with Hannah Adams, Associate Solicitor and Head of Special Educational Needs at Shentons Solicitors, who has personal experience of the EHCP process as a Mum and who also helps parents navigate the system as a solici ...
A world first…trials in Cooling in Mild H.I.E. (COMET)
Yesterday Peeps attended the launch of the COMET trial in London. This trial will look at whether there are benefits to cooling (therapeutic hypothermia) for babies who have a diagnosis of mild H.I.E. Up to now, cooling has been a recognised treatmen ...
Mental Health Awareness Week
As Mental Health Awareness week starts, today has also seen a huge focus (rightly so) around birth trauma in the news and on social media.We just want to gently extend our support to you, if or when it is ever needed.We may not have a magic wand to c ...
A big “well done!” for the Big Step challengers!
Thank you so much to those of you who took part in the Big Step Challenge across April, raising funds and awareness for H.I.E. support. Over £1,000 has been donated so far – a huge amount that will go a long way in helping us reach more famili ...
Bendrigg 2024
This time last week we were arriving at The Bendrigg Trust in Kendal, for the second Peeps’ activity weekend. Despite some mixed weather, a great time was had by all – abseiling, rock climbing, indoor caving, archery, bikes and more! Ever ...
Research opportunity
Have you had a child with HIE? A UK research study is being done to explore the impact of HIE on families. There are two parts you can choose to be involved in if you are a parent whose child was cooled in the UK 1) An anonymous surve ...
Let’s chat…
Hi all, just a little update for everyone. We are changing up our coffee mornings to new and improved ‘Let’s chat…’ sessions. We’ll be holding one session per month to begin with, for an hour, some in the day and some in an evening, to offe ...
What’s on in April
There’s plenty going on in April, and of course we have H.I.E. Awareness Day on the 4th – raising awareness is important so that we can talk about H.I.E., help educate others and reach those who may benefit from a little support. IfR ...
Could you be a Peer Support Volunteer?
We are looking for individuals that may be interested in becoming one of our Peer Support Volunteers! Are you a parent or carer of a child that has experienced an H.I.E. event? We would love to hear from you if your journey has focused around a H.I.E ...
Fancy joining our school project trial?
We’re trialling a project with a primary school who have been supporting Peeps, and would love your involvement! The idea is that we introduce “Peeps Pals” (think pen-pals!), where some of our HIEroes can share a little bit about th ...
Why we now use H.I.E.
You may have noticed over recent months we have started to use H.I.E. (with the dots in between), instead of HIE. If you’re wondering why, it’s because we introduced the Recite Me accessibility toolbar on our website. It’s brilliant ...
Want to know more about how H.I.E. affects feeding?
So do we! Sarah Edney, a speech and language therapist and friend of Peeps, is doing a PhD on feeding outcomes following H.I.E. and what can help make feeding better and easier for families. The study is called ‘Factors Influencing Feeding Ou ...
The Manchester 10km team is growing!
Fancy celebrating with Team Peeps at the Manchester 10km this May? The group of runners, joggers and walkers is growing, and we’d love you to be part of it too. Don’t worry about going for a personal best, or being the fastest – it& ...
Meet Georgia
“Hey my name is Georgia, I’m 29 years old and I was born with H.I.E. in June 1994 resulted in pvl and quadriplegic spastic athetoid cerebral palsy and I need 24 hour support for everything that is provided by my parents and care team. I love mus ...
A date for your diary – 4th April
If you’ve got a new diary or calendar, or are getting organised for the year, make sure you pop the 4th April on as H.I.E. Awareness Day. There’ll be lots of easy (and free!) ways to get involved, and you can make such a big difference. H.I.E. is ...