Blogs
Christmas Poem
Christmas is fast approaching and whilst it can be a lovely time for those who celebrate it, there can be lots of other emotions too. Michelle, Charity CoOrdinator, has written this poem and shares some of her thoughts around the festive period. Chri ...
Happy Hanukkah!
Here’s to a bright and meaningful Hanukkah, to all our Peeps’ families and friends who are celebrating. ...
Christmas Prize Draw!
We just couldn’t wait any longer! The Peeps’ Christmas Prize Draw is now up and running! For just £2 a ticket, you can be in with a chance of winning some fabulous prizes, including a £200 John Lewis Voucher, a signed Manchester City fo ...
Feel good Friday
If you’re looking for a little way to feel good for a Friday, have a look our online shop. You can now cover the cost of a Peeps Parent Pack, containing all sorts of info and goodies, that will be sent to a family at the start of their HIE jour ...
It’s an app!
Well this is exciting…the new free Peeps app is now live in the App Store and on Google Play! Just search PEEPS HIE to find information, contact details, family stories, and much more. Is this the first app dedicated to supporting those to ...
Baby Loss Awareness Week (BLAW), 9th – 15th October
Tomorrow marks the start of Baby Loss Awareness Week (#BLAW). More information can be found at https://babyloss-awareness.org There will be lots of posts and sharing across social media platforms from different experiences, groups and organisations. ...
World Cerebral Palsy Day
Today is World Cerebral Palsy Day. Some HIE events (not all) lead to a CP diagnosis. “We ask people around the world to come together to celebrate and support those living with CP, embrace diversity and to help create a more accessible future f ...
Parent panel feedback
The first request for our new Parent Panel was to review the leaflet written for parents/carers at the start of their HIE journey. This leaflet usually goes in our parent packs that are given to families in neonatal units. We listened to the feedback ...
Our fundraising champs!
We’d like to say a big “well done” to some of our recent fundraisers. There have been cycles, swims, standing on top of a plane, and even stepping out of a plane (with a parachute of course!). Every single £ raised goes towards sup ...
We’re nearly 3….
On the 9th August Peeps will be 3 years old – where does the time go? To help celebrate, we’ll be launching our virtual balloon race. It’s not too late to take part. Simply click here and for just £3 you can buy and customise you ...
A record breaking July…
What a month (and it’s not even over yet!) – thanks to our new charity co-ordinators Liz and Michelle, over 100 parent packs have been sent out in July alone. These free packs are going to neonatal units, some of which are having them for ...
Would you like to be on our Parent Panel?
As a charity, we have grown over the last couple of years, and we’re always mindful to try and make sure we represent and support all HIE journeys, experiences and outcomes. We’re not the experts though – you are! We’re ther ...
A day in the life of an unpaid carer
Thanks to Siani for sharing her blog (and beautiful picture), giving such an honest insight in to what family life can be like with a child who has additional needs. You can read her post here. If anything affects you or you could use a little suppo ...
Carers Week
This week is #CarersWeek. So many of our families also take on a Carer role, so we want to give a huge shout out for all you do. It can be exhausting and challenging, but done out of love, and those who haven’t experienced it may not understand ful ...
Mental Health Awareness Week
Today sees the start of #mentalhealthawareness week. We al have mental health, and sometimes we need a bit of a helping hand to get it back on track. Since Peeps started, over 180 hours of counselling/therapy has been funded, and our promise is to al ...
A huge thank you!
A huge THANK YOU and well done to everyone who has taken part in Pledge for Peeps. In the last month, so much awareness of HIE has been raised, and a whopping £8,400 too. Just amazing! We hope you’ve enjoyed taking part. We’ve loved seei ...
Wsparcie w języku polskim
Peeps to jedyna organizacja charytatywna w Wielkiej Brytanii zajmująca się wspieraniem osób dotkniętych przez HIE. HIE to skrót od angielskiego określenia „hypoxic-ischemic encephalopathy”, które oznacza encefalopatię niedotlenieniowo-nie ...
Day by Day…
Day by Day: growing in awareness and understanding Following a traumatic birth and 23 minute resuscitation my son was alive, but only just. When hypoxia ischaemic encephalopathy (oxygen deprivation and restricted blood flow that affects the b ...
Happy New Year Poem
The journey we planned wasn’t to be The dream of you being placed on me Instead I heard ringing from the alarms Then there were doctors, midwives and my empty arms It felt like forever but then you suddenly cried! And I cried alongside y ...
Here’s the thing about HIE…
Just one week to go until HIE Awareness Day! We’d love as many people to be involved as possible, spreading the word about HIE and helping us reach more families. What do you want people to know about HIE? From serious matters to more light hea ...
Peeps on Twitter
@WhoseShoes @Claireflo @SShanmugaling @KirstyJOrmston @clarecane @CallyTann @dderbyshire519 @ElaineMcMahonOT @sensorybegin @UptonMichele @survivingpreemi @DrColeFletch @theQCommunity @mancini_smith @DrNikkijcrowley @KatielouiseHa14 @MusicTherapyWks @whosalama @FWmaternity Are you a member of @qcommunity? 🤔
Please vote ✅ 💜 for this vital collaborative work to promote #FamilyIntegratedCare, making a huge difference (short and long-term) to families with babies in #neonatal care.
https://q.health.org.uk/idea/2022/no-more-theoretical-mummy/
#NICU #FICare #WhoseShoes #Coproduction
New article published on HIE and Multi-Organ Dysfunction. @StanfordNeo @mcgillu @HopeforHIE
Association between multi-organ dysfunction and adverse outcome in infants with hypoxic ischemic encephalopathy https://pubmed.ncbi.nlm.nih.gov/35578019/