Blogs
We’ll still bee here…
As England is preparing to go in to a second lockdown, we just wanted to reassure everyone that we are still here, and will be continuing to support as much as we can. A reminder of some of the things we offer to anyone in the UK who has been affecte ...
Thank you!
A big THANK YOU to Lloyd’s of London – a lovely lady who works there nominated @PeepsHIE to receive a charitable donation, and it landed in our bank account this week. We are so grateful and wanted to share our thanks. As with all donatio ...
Let’s keep talking
If you’re finding it hard… …for whatever reason, then please don’t struggle on your own. Going through a HIE experience can be difficult. The effects, whether physical or emotional can be hard to manage, sometimes catching you off guard. Thro ...
So you’ve found yourself in the NICU
By Stephanie Swann This is a message for all the new parents out there who have found themselves in the unfamiliar world of the Neonatal Intensive Care Unit. If your baby has sustained a significant hypoxic brain injury during birth and you have happ ...
We did good…
By Nicola Sheldon I remember the morning of November 17th 2015 very clearly. Thomas had been home from the hospital less than 24 hours and Chris was preparing to leave to work, his paternity leave long since used up as Thomas was now 1 month and 2 da ...
Special Educational Needs (SEN) Parenting And The Use Of Social Media Sharing
By Stephanie Swann Sharing information and photographs of our children on social media is a subject that many people will have varying opinions on whether their child is neurotypical or has additional needs or disabilities. I think this is a parentin ...
20 Things I would tell my past self…
…by Stephanie Swann 20 things I would tell my past self about being a parent of a child with disabilities As my little boy Joseph is getting older and we progress further through our HIE journey I feel like I have a lot more time, mental clar ...
Peeps Apparel
If you’d like to support Peeps and raise awareness wherever you go, then why not get hold of one of our t-shirts or hoodies? Ladies, gents and kids sizes available. Just click here to complete a very quick form and we’ll be in touch! ...
Making a difference…
One of our mums has kindly shared some feedback after we sourced and funded some specialised counselling for her. Thanks to the generosity of our supporters, and a brilliant grant from The National Lottery Community Fund, we are able to reach and hel ...
Good news for under 3s mobility support
“Family Fund Mobility Support aims to help families raising a disabled or seriously ill child under 3 years old to meet their mobility needs through a car leasing package for a limited period.” (www.familyfund.org.uk). This is great news ...
Parent Story – Meet Albie
Our story, Francesca and Macaulay ALBIE THOMAS MCGOWAN, 8lb 9oz, 18/12/19 Wednesday 18th December, 40+1, my waters had gone the day before and we were ready to be induced! 2nd baby, low risk pregnancy, we were soooo excited! Induction began, pessary ...
Wing Walk – 2021!
As with many things, the Wing Walk for Peeps had to be postponed due to Covid, but Jade from Sign along with us, one of our Ambassadors, is sticking to her word and will be taking to the skies next year! She’s getting so close to her £1500 tar ...
Thank you Tesco!
Huge thanks to Tesco and Groundwork UK for a £500 award from their Bags of Help Covid19 Communities fund. So many charities are feeling the strain at the moment, especially small charities like us. The impact on Covid19 is huge. Thanks to generosity ...
Mental Health and Wellbeing
We all no doubt know the importance of looking after our mental health and wellbeing, but sometimes finding the time, energy, or money to put the theory in to practice can be tricky. We have listened to feedback from some of our HIE parents and are c ...
CVI Society
If any of our families have a little one with CVI (Cortical Visual Impairment), The CVI Society are looking for 2 more babies for their colour tent trial: ‘We need two more parents and babies for the dome trial then we can move forward with fut ...
Father’s Day
Sending Father’s Day wishes to the Dad (or significant chap/chapess) in your life, whether with us or in our hearts. If anyone finds today emotional, for whatever reason, then please be kind to yourself, and reach out if you need a little suppo ...
Firefly Blogs
We know that sometimes the HIE journey can feel lonely, but if you have time to grab a cuppa head over to Firefly to browse through the blogs that families have written. So many different conditions, circumstances and outcomes, the chances are you ...
Life in Lockdown
Sarah, Peeps Charity Manager, shares an insight as to how life in lockdown is for their family. Whilst many restrictions are starting to be lifted, lots of families, including some of those affected by HIE are continuing to shield. They aren’t ...
HIE in the Covid World
By Sarah Jepson-Jones So on HIE awareness day in this crazy Covid world I am reflecting on what it means to us in lockdown. We have a gorgeous 4 yearr old with HIE – quadriplegic Cerebral Palsy, tube fed, non verbal and not independently mobile ...
Peeps on Twitter
‘We need to care for the carers.’ Looking after yourself isn’t a luxury - it’s a necessity.
I share advice, tips and strategies from other parent carers, based on their lived experience, as well as research and psychology.
Available here: https://t.co/TZhKUbN4lL
#parentcarer https://t.co/bL1pij2VfH
64 MPs have agreed to hear directly from parent carers at our Friday parliamentary event on the impact of the pandemic. As parents are busy preparing their speeches, can you retweet this and get more MPs to come and support the campaign?
Invite your MP: https://t.co/g4xLIKUqV7