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20 Things I would tell my past self…

 21st August 2020

…by Stephanie Swann 20 things I would tell my past self about being a parent of a child with disabilities  As my little boy Joseph is getting older and we progress further through our HIE journey I feel like I have a lot more time, mental clar ...

Peeps Apparel

 8th August 2020

If you’d like to support Peeps and raise awareness wherever you go, then why not get hold of one of our t-shirts or hoodies? Ladies, gents and kids sizes available. Just click here to complete a very quick form and we’ll be in touch! ...

Making a difference…

 28th July 2020

One of our mums has kindly shared some feedback after we sourced and funded some specialised counselling for her. Thanks to the generosity of our supporters, and a brilliant grant from The National Lottery Community Fund, we are able to reach and hel ...

Good news for under 3s mobility support

 22nd July 2020

“Family Fund Mobility Support aims to help families raising a disabled or seriously ill child under 3 years old to meet their mobility needs through a car leasing package for a limited period.” (www.familyfund.org.uk). This is great news ...

Parent Story – Meet Albie

 17th July 2020

Our story, Francesca and Macaulay ALBIE THOMAS MCGOWAN, 8lb 9oz, 18/12/19 Wednesday 18th December, 40+1, my waters had gone the day before and we were ready to be induced! 2nd baby, low risk pregnancy, we were soooo excited! Induction began, pessary ...

Wing Walk – 2021!

 14th July 2020

As with many things, the Wing Walk for Peeps had to be postponed due to Covid, but Jade from Sign along with us, one of our Ambassadors, is sticking to her word and will be taking to the skies next year! She’s getting so close to her £1500 tar ...

Thank you Tesco!

 29th June 2020

Huge thanks to Tesco and Groundwork UK for a £500 award from their Bags of Help Covid19 Communities fund. So many charities are feeling the strain at the moment, especially small charities like us. The impact on Covid19 is huge. Thanks to generosity ...

Mental Health and Wellbeing

 26th June 2020

We all no doubt know the importance of looking after our mental health and wellbeing, but sometimes finding the time, energy, or money to put the theory in to practice can be tricky. We have listened to feedback from some of our HIE parents and are c ...

CVI Society

 22nd June 2020

If any of our families have a little one with CVI (Cortical Visual Impairment), The CVI Society are looking for 2 more babies for their colour tent trial: ‘We need two more parents and babies for the dome trial then we can move forward with fut ...

Father’s Day

 21st June 2020

Sending Father’s Day wishes to the Dad (or significant chap/chapess) in your life, whether with us or in our hearts. If anyone finds today emotional, for whatever reason, then please be kind to yourself, and reach out if you need a little suppo ...

Firefly Blogs

 19th June 2020

We know that sometimes the HIE journey can feel lonely, but if you have time to grab a cuppa head over to Firefly to browse through the blogs that families have written. So many different conditions, circumstances and outcomes, the chances are you ...

Life in Lockdown

 17th June 2020

Sarah, Peeps Charity Manager, shares an insight as to how life in lockdown is for their family. Whilst many restrictions are starting to be lifted, lots of families, including some of those affected by HIE are continuing to shield. They aren’t ...

HIE in the Covid World

 4th April 2020

By Sarah Jepson-Jones So on HIE awareness day in this crazy Covid world I am reflecting on what it means to us in lockdown. We have a gorgeous 4 yearr old with HIE – quadriplegic Cerebral Palsy, tube fed, non verbal and not independently mobile ...

Band of Brothers

 26th February 2020

By Nicola Sheldon ...

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New article published on HIE and Multi-Organ Dysfunction. @StanfordNeo @mcgillu @HopeforHIE

Association between multi-organ dysfunction and adverse outcome in infants with hypoxic ischemic encephalopathy https://pubmed.ncbi.nlm.nih.gov/35578019/

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