Useful Info
Useful Info
Referrals to Peeps for additional support can be done by the family or healthcare professional. Check out this page for the form.
There is a wide range of support out there for parents/families – we’ve added some useful links as a good starting below.
Jump to a section using the following category options:
Neonatal care & New Families Mental health and wellbeing Healthcare Bereavement Support Financial support & Employment Advice Other charities / groupsNeonatal care & New Families
Spoons (Greater Manchester / North West)
Due to our own personal experiences of neonatal care we understand and empathise with families who find themselves ...
VisitTommy’s
Funding research into miscarriage, stillbirth and premature birth, and provide pregnancy health information to pare...
VisitThe Birth Trauma Association
The Birth Trauma Association (BTA) supports all women who have had a traumatic birth experience.
VisitAssociation for Post Natal Illness
Providing support to mothers suffering from post-natal illness
VisitSouth West Neonatal Network
Caring for all babies requiring neonatal care and their families across the South West
VisitNorthwest Neonatal Operational Delivery Network
Sharing information on neonatal services for parents, families and staff
VisitHome-Start UK
A local community network of trained volunteers and expert support helping families with young children through the...
VisitHope for HIE
A resource for families whose children have been diagnosed with hypoxic ischemic encephalopathy (HIE).
VisitHIE Network Forum on Facebook
This is a closed group, created just for parents in the UK who have experienced HIE.
VisitMental health and wellbeing
Affinity Hub
A website signposting to emotional support for parents and carers of children with additional needs.
VisitHeadroom (BBC Toolkit)
We know we can’t solve all your troubles, but we can give you tools to help. Whether it is everyday tips, sounds ...
VisitAnxiety UK
Whether you have anxiety, stress, anxiety-based depression or a phobia that’s affecting your daily life, Anxiety ...
VisitSaneLine
Providing mental health support and information for anyone affected by mental ill health, including family, friends...
VisitFood for the Brain Foundation
Raising awareness of the importance of optimum nutrition in mental health. A charitable foundation working to infor...
VisitPANDAS
PND Awareness & Support – PANDAS offer hope, empathy and support for every parent or network affected by ...
VisitDads Matter
Supporting Dads and Mums suffering from anxiety, depression and post-traumatic stress.
VisitThe Samaritans
If you need to talk to someone outside of the Peeps hours, the Samaritans are available 24/7.
VisitNHS – Every Mind Matters
Expert advice and practical tips to help you look after your mental health and wellbeing.
VisitHealthcare
Medicines For Children
Practical advice and information about medicines prescribed for children.
VisitThe Birth Trauma Association
The Birth Trauma Association (BTA) supports all women who have had a traumatic birth experience.
VisitSouth West Neonatal Network
Caring for all babies requiring neonatal care and their families across the South West
VisitNorthwest Neonatal Operational Delivery Network
Sharing information on neonatal services for parents, families and staff
VisitLondon Neonatal Operational Delivery Network
Bringing units across London together to provide well-rounded co-ordinated care for your baby
VisitEast Midlands Neonatal Operational Delivery Network
Ensuring babies who require neonatal care and their families receive the best care as close to home as possible
VisitHealthcare Safety Investigation Branch
To improve patient safety through effective and independent investigations that don’t apportion blame or liab...
VisitBritish Association of Perinatal Medicine
BAPM improves standards of perinatal care by supporting all those involved in perinatal care.
VisitBereavement Support
Winston’s Wish
Bereavement charity – supporting children and their families after the death of a parent or sibling.
VisitRemember My Baby
Remembrance photography for parents experiencing the loss of their baby before, during or shortly after birth.
VisitReubens Retreat
Walking side-by-side with families who have a child/children with life-threatening or life-limiting conditions, as ...
VisitThe Lullaby Trust
Providing bereavement support to anyone affected by the loss of a baby or child
VisitFinancial support & Employment Advice
Working Families
An independent charity offering free advice on employment rights for parents and carers and in-work benefits for fa...
VisitGov.uk – Pay and Work Rights
The government Pay and work rights helpline and complaints section.
VisitTurn2Us
A national charity helping people when times get tough, providing financial support to help people get back on trac...
VisitOther charities / groups
Little Hiccups (Leeds)
Little Hiccups is a Leeds based, award winning support group that has been set up by parents who have children with...
VisitRainbow Hub (North West)
Families are right at the heart of Rainbow Hub. Based in Mawdesley, Lancashire, we’re a charity that provides chi...
VisitAccessible Inclusive Music – AIM
Accessible and inclusive musical opportunities for children and young people with additional needs and disabilities...
VisitPyjama Fairies
Pyjama Fairies is the only UK charity to make pyjamas and surgical gowns specially designed for babies and children...
VisitChild Brain Injury Trust
The Child Brain Injury Trust was established by a group of health professionals in 1991 to research and provide i...
VisitNational Portage Association
Portage is a home visiting educational service for pre-school children with additional support needs and their fami...
VisitWorking Families
An independent charity offering free advice on employment rights for parents and carers and in-work benefits for fa...
VisitThe UK Infantile Spasm Trust
The UK Infantile Spasms Trust (UKIST) provides a network of support to families with children affected by the rare ...
VisitBeacon House
Beacon House is a specialist, innovative and creative therapeutic service for young people, families and adults. W...
VisitCaudwell Children
Helping children and families with additional needs, by providing access to the services, equipment, therapies and ...
VisitThe Bobath Centre
A specialist treatment and training centre, and a charity dedicated to supporting children and families living wit...
VisitBaby Basics
Baby Basics provides much needed essentials and equipment to mothers and families who are unable to provide these i...
Visitbibic
Delivery of therapies and support to improve the day-to-day lives of children with brain injuries and/or developmen...
VisitDads Matter
Supporting Dads and Mums suffering from anxiety, depression and post-traumatic stress.
VisitReubens Retreat
Walking side-by-side with families who have a child/children with life-threatening or life-limiting conditions, as ...
VisitChildren Today
Helping children and young people with disabilities by providing grants for specialised equipment
VisitTommy’s
Funding research into miscarriage, stillbirth and premature birth, and provide pregnancy health information to pare...
VisitThe Birth Trauma Association
The Birth Trauma Association (BTA) supports all women who have had a traumatic birth experience.
VisitFamily Lives
Providing help and support to families who are struggling, building better family lives together
VisitCare for the Family
Promoting strong family life and helping those who face family difficulties
VisitThe Rainbow Trust
A Children’s Charity provides emotional and practical support to families who have a child with life-threaten...
VisitPeeps on Twitter
@WhoseShoes @Claireflo @SShanmugaling @KirstyJOrmston @clarecane @CallyTann @dderbyshire519 @ElaineMcMahonOT @sensorybegin @UptonMichele @survivingpreemi @DrColeFletch @theQCommunity @mancini_smith @DrNikkijcrowley @KatielouiseHa14 @MusicTherapyWks @whosalama @FWmaternity Are you a member of @qcommunity? 🤔
Please vote ✅ 💜 for this vital collaborative work to promote #FamilyIntegratedCare, making a huge difference (short and long-term) to families with babies in #neonatal care.
https://q.health.org.uk/idea/2022/no-more-theoretical-mummy/
#NICU #FICare #WhoseShoes #Coproduction
New article published on HIE and Multi-Organ Dysfunction. @StanfordNeo @mcgillu @HopeforHIE
Association between multi-organ dysfunction and adverse outcome in infants with hypoxic ischemic encephalopathy https://pubmed.ncbi.nlm.nih.gov/35578019/