Useful Info | Peeps HIE Charity

Useful Info

Useful Info

Referrals to Peeps for additional support can be done by the family or healthcare professional. Check out this page for the form.

There is a wide range of support out there for parents/families – we’ve added some useful links as a good starting below.

Neonatal care & New Families


Spoons (Greater Manchester / North West)

Due to our own personal experiences of neonatal care we understand and empathise with families who find themselves ...

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The NCT

New parent support – click here to find out more.

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Tommy’s

Funding research into miscarriage, stillbirth and premature birth, and provide pregnancy health information to pare...

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The Children’s Sleep Charity

Supporting families to help them get a better night’s sleep.

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The Birth Trauma Association

The Birth Trauma Association (BTA) supports all women who have had a traumatic birth experience.

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Bliss

For babies born premature or sick

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Association for Post Natal Illness

Providing support to mothers suffering from post-natal illness

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South West Neonatal Network

Caring for all babies requiring neonatal care and their families across the South West

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Northwest Neonatal Operational Delivery Network

Sharing information on neonatal services for parents, families and staff

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Home-Start UK

A local community network of trained volunteers and expert support helping families with young children through the...

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Hope for HIE

A resource for families whose children have been diagnosed with hypoxic ischemic encephalopathy (HIE).

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HIE Network Forum on Facebook

This is a closed group, created just for parents in the UK who have experienced HIE.

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Mental health and wellbeing


Affinity Hub

A website signposting to emotional support for parents and carers of children with additional needs.

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Men’s Health Forum

24/7 stress support for men via chat, text and email

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Headroom (BBC Toolkit)

We know we can’t solve all your troubles, but we can give you tools to help. Whether it is everyday tips, sounds ...

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Anxiety UK

Whether you have anxiety, stress, anxiety-based depression or a phobia that’s affecting your daily life, Anxiety ...

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SaneLine

Providing mental health support and information for anyone affected by mental ill health, including family, friends...

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Food for the Brain Foundation

Raising awareness of the importance of optimum nutrition in mental health. A charitable foundation working to infor...

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PANDAS

PND Awareness & Support – PANDAS offer hope, empathy and support for every parent or network affected by ...

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Dads Matter

Supporting Dads and Mums suffering from anxiety, depression and post-traumatic stress.

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The Calm Zone (CALM)

The calm zone – the Campaign Against Living Miserably.

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The Samaritans

If you need to talk to someone outside of the Peeps hours, the Samaritans are available 24/7.

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NHS – Every Mind Matters

Expert advice and practical tips to help you look after your mental health and wellbeing.

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Mind

Providing advice and support to empower anyone experiencing a mental health problem.

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Healthcare


Medicines For Children

Practical advice and information about medicines prescribed for children.

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The Birth Trauma Association

The Birth Trauma Association (BTA) supports all women who have had a traumatic birth experience.

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South West Neonatal Network

Caring for all babies requiring neonatal care and their families across the South West

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Northwest Neonatal Operational Delivery Network

Sharing information on neonatal services for parents, families and staff

Visit

London Neonatal Operational Delivery Network

Bringing units across London together to provide well-rounded co-ordinated care for your baby

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East Midlands Neonatal Operational Delivery Network

Ensuring babies who require neonatal care and their families receive the best care as close to home as possible

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Healthcare Safety Investigation Branch

To improve patient safety through effective and independent investigations that don’t apportion blame or liab...

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BeBop

Baby Brain Protection – helping families and healthcare professionals understand HIE

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British Association of Perinatal Medicine

BAPM improves standards of perinatal care by supporting all those involved in perinatal care.

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Bereavement Support


The Compassionate Friends

Supporting bereaved parents and their families.

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Winston’s Wish

Bereavement charity – supporting children and their families after the death of a parent or sibling.

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Remember My Baby

Remembrance photography for parents experiencing the loss of their baby before, during or shortly after birth.

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Reubens Retreat

Walking side-by-side with families who have a child/children with life-threatening or life-limiting conditions, as ...

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Sands

A charity supporting those affected by the death of a baby.

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The Lullaby Trust

Providing bereavement support to anyone affected by the loss of a baby or child

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Once Upon A Smile

Providing emotional and practical support to bereaved families.

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Financial support & Employment Advice


Working Families

An independent charity offering free advice on employment rights for parents and carers and in-work benefits for fa...

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Newlife

Providing grants for aids and equipment for children with additional needs.

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Gov.uk – Pay and Work Rights

The government Pay and work rights helpline and complaints section.

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ACAS

For impartial employment advice.

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Family Fund

Providing grants and support for children with illness/disability.

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Turn2Us

A national charity helping people when times get tough, providing financial support to help people get back on trac...

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Other charities / groups


CPotential

CPotential Trust (formerly the London Centre for Children with Cerebral Palsy) provides life-changing therapies and...

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The Movement Centre

Based in Oswestry, Shropshire, helping children with movement disabilities.  The Movement Centre treats children w...

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MASIC

Supporting women with injuries from childbirth.

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Little Hiccups (Leeds)

Little Hiccups is a Leeds based, award winning support group that has been set up by parents who have children with...

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Rainbow Hub (North West)

Families are right at the heart of Rainbow Hub. Based in Mawdesley, Lancashire, we’re a charity that provides chi...

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Accessible Inclusive Music – AIM

Accessible and inclusive musical opportunities for children and young people with additional needs and disabilities...

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Pyjama Fairies

Pyjama Fairies is the only UK charity to make pyjamas and surgical gowns specially designed for babies and children...

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Child Brain Injury Trust

The Child Brain Injury Trust was established by a group of health professionals in 1991 to research and provide i...

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National Portage Association

Portage is a home visiting educational service for pre-school children with additional support needs and their fami...

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Working Families

An independent charity offering free advice on employment rights for parents and carers and in-work benefits for fa...

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AvMA

Action Against Medical Accidents – the UK charity for patient safety and justice.

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The UK Infantile Spasm Trust

The UK Infantile Spasms Trust (UKIST) provides a network of support to families with children affected by the rare ...

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Beacon House

Beacon House is a specialist, innovative and creative therapeutic service for young people, families and adults. W...

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Caudwell Children

Helping children and families with additional needs, by providing access to the services, equipment, therapies and ...

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The Bobath Centre

A specialist treatment and training centre, and a charity dedicated to supporting children and families living wit...

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Scope

Supporting young people with cerebral palsy

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Baby Basics

Baby Basics provides much needed essentials and equipment to mothers and families who are unable to provide these i...

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bibic

Delivery of therapies and support to improve the day-to-day lives of children with brain injuries and/or developmen...

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Newlife

Providing grants for aids and equipment for children with additional needs.

Visit

Dads Matter

Supporting Dads and Mums suffering from anxiety, depression and post-traumatic stress.

Visit

Reubens Retreat

Walking side-by-side with families who have a child/children with life-threatening or life-limiting conditions, as ...

Visit

Sky Badger

Finding help for disabled children and their families

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Best Beginnings

Working to give every child the best start in life.  

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Children Today

Helping children and young people with disabilities by providing grants for specialised equipment

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WellChild

Helping children and young people to thrive, at home with their families.

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ACAS

For impartial employment advice.

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Tommy’s

Funding research into miscarriage, stillbirth and premature birth, and provide pregnancy health information to pare...

Visit

The Children’s Sleep Charity

Supporting families to help them get a better night’s sleep.

Visit

The Birth Trauma Association

The Birth Trauma Association (BTA) supports all women who have had a traumatic birth experience.

Visit

Sibs

For brothers and sisters of disabled children and adults.

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Relate

Relationship support for those who need to talk about their situation.

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KIDS

Giving disabled children a brighter future.

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Family Lives

Providing help and support to families who are struggling, building better family lives together

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Disabled Living

Practical solutions supporting children and adults who have a disability.

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Cerebra

Working wonders for children with brain conditions

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Contact

For families with disabled children

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Citizens Advice

Lots of advise on topics such as money, work, housing

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Care for the Family

Promoting strong family life and helping those who face family difficulties

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Carers UK

making life better for carers

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Carers Trust

Supporting carers in the UK and signposting to support in your area

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The Rainbow Trust

A Children’s Charity provides emotional and practical support to families who have a child with life-threaten...

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Just a few of the things we do here at Peeps, for anyone in the UK touched by #HIE. If we can help in any way, please don't hesitate to get in touch. Check out our website http://www.peeps-hie.org or download our free app PEEPS HIE #peersupport #charity #livedexperience

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