Useful Info | Peeps HIE Charity

Useful Info

Useful Info

Referrals to Peeps for additional support can be done by the family or healthcare professional. Check out this page for the form.

There is a wide range of support out there for parents/families – we’ve added some useful links as a good starting below.

Neonatal care & New Families


The NCT

New parent support – click here to find out more.

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Tommy’s

Funding research into miscarriage, stillbirth and premature birth, and provide pregnancy health information to pare...

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The Children’s Sleep Charity

Supporting families to help them get a better night’s sleep.

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The Birth Trauma Association

The Birth Trauma Association (BTA) supports all women who have had a traumatic birth experience.

Visit

Bliss

For babies born premature or sick

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Association for Post Natal Illness

Providing support to mothers suffering from post-natal illness

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South West Neonatal Network

Caring for all babies requiring neonatal care and their families across the South West

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Northwest Neonatal Operational Delivery Network

Sharing information on neonatal services for parents, families and staff

Visit

Home-Start UK

A local community network of trained volunteers and expert support helping families with young children through the...

Visit

Hope for HIE

A resource for families whose children have been diagnosed with hypoxic ischemic encephalopathy (HIE).

Visit

Hope for HIE Facebook Group

Visit

HIE Network Forum on Facebook

This is a closed group, created just for parents in the UK who have experienced HIE.

Visit

Mental health and wellbeing


Dads Matter

Supporting Dads and Mums suffering from anxiety, depression and post-traumatic stress.

Visit

The Calm Zone (CALM)

The calm zone – the Campaign Against Living Miserably.

Visit

The Samaritans

If you need to talk to someone outside of the Peeps hours, the Samaritans are available 24/7.

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NHS – Every Mind Matters

Expert advice and practical tips to help you look after your mental health and wellbeing.

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Mind

Providing advice and support to empower anyone experiencing a mental health problem.

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Healthcare


The Birth Trauma Association

The Birth Trauma Association (BTA) supports all women who have had a traumatic birth experience.

Visit

South West Neonatal Network

Caring for all babies requiring neonatal care and their families across the South West

Visit

Northwest Neonatal Operational Delivery Network

Sharing information on neonatal services for parents, families and staff

Visit

London Neonatal Operational Delivery Network

Bringing units across London together to provide well-rounded co-ordinated care for your baby

Visit

East Midlands Neonatal Operational Delivery Network

Ensuring babies who require neonatal care and their families receive the best care as close to home as possible

Visit

Healthcare Safety Investigation Branch

To improve patient safety through effective and independent investigations that don’t apportion blame or liab...

Visit

BeBop

Baby Brain Protection – helping families and healthcare professionals understand HIE

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British Association of Perinatal Medicine

BAPM improves standards of perinatal care by supporting all those involved in perinatal care.

Visit

Bereavement Support


Remember My Baby

Remembrance photography for parents experiencing the loss of their baby before, during or shortly after birth.

Visit

Reubens Retreat

Walking side-by-side with families who have a child/children with life-threatening or life-limiting conditions, as ...

Visit

Sands

A charity supporting those affected by the death of a baby

Visit

The Lullaby Trust

Providing bereavement support to anyone affected by the loss of a baby or child

Visit

Once Upon A Smile

Providing emotional and practical support to bereaved families.

Visit

Financial support & Employment Advice


Newlife

Providing grants for aids and equipment for children with additional needs.

Visit

Gov.uk – Pay and Work Rights

The government Pay and work rights helpline and complaints section.

Visit

ACAS

For impartial employment advice.

Visit

Family Fund

Providing grants and support for children with illness/disability.

Visit

Turn2Us

A national charity helping people when times get tough, providing financial support to help people get back on trac...

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Other charities / groups


Baby Basics

Baby Basics provides much needed essentials and equipment to mothers and families who are unable to provide these i...

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bibic

Delivery of therapies and support to improve the day-to-day lives of children with brain injuries and/or developmen...

Visit

Newlife

Providing grants for aids and equipment for children with additional needs.

Visit

Dads Matter

Supporting Dads and Mums suffering from anxiety, depression and post-traumatic stress.

Visit

Reubens Retreat

Walking side-by-side with families who have a child/children with life-threatening or life-limiting conditions, as ...

Visit

Sky Badger

Finding help for disabled children and their families

Visit

Best Beginnings

Working to give every child the best start in life.  

Visit

Children Today

Helping children and young people with disabilities by providing grants for specialised equipment

Visit

WellChild

Helping children and young people to thrive, at home with their families.

Visit

ACAS

For impartial employment advice.

Visit

Tommy’s

Funding research into miscarriage, stillbirth and premature birth, and provide pregnancy health information to pare...

Visit

The Children’s Sleep Charity

Supporting families to help them get a better night’s sleep.

Visit

The Birth Trauma Association

The Birth Trauma Association (BTA) supports all women who have had a traumatic birth experience.

Visit

Sibs

For brothers and sisters of disabled children and adults.

Visit

Relate

Relationship support for those who need to talk about their situation.

Visit

KIDS

Giving disabled children a brighter future.

Visit

Family Lives

Providing help and support to families who are struggling, building better family lives together

Visit

Disabled Living

Practical solutions supporting children and adults who have a disability.

Visit

Cerebra

Working wonders for children with brain conditions

Visit

Contact

For families with disabled children

Visit

Citizens Advice

Lots of advise on topics such as money, work, housing

Visit

Care for the Family

Promoting strong family life and helping those who face family difficulties

Visit

Carers UK

making life better for carers

Visit

Carers Trust

Supporting carers in the UK and signposting to support in your area

Visit

The Rainbow Trust

A Children’s Charity provides emotional and practical support to families who have a child with life-threaten...

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