News
Episode 5: Peeps in a Podcast – The Betweeners
Join Sarah, Andrea and Lydia as they talk about their H.I.E. experiences, and how the name for the group “The BeTweeners” came about! You can listen to the podcast here. […] ...
A world first…trials in Cooling in Mild H.I.E. (COMET)
Yesterday Peeps attended the launch of the COMET trial in London. This trial will look at whether there are benefits to cooling (therapeutic hypothermia) for babies who have a diagnosis […] ...
Mental Health Awareness Week
As Mental Health Awareness week starts, today has also seen a huge focus (rightly so) around birth trauma in the news and on social media.We just want to gently extend […] ...
A big “well done!” for the Big Step challengers!
Thank you so much to those of you who took part in the Big Step Challenge across April, raising funds and awareness for H.I.E. support. Over £1,000 has been donated […] ...
Bendrigg 2024
This time last week we were arriving at The Bendrigg Trust in Kendal, for the second Peeps’ activity weekend. Despite some mixed weather, a great time was had by all […] ...
Research opportunity
Have you had a child with HIE? A UK research study is being done to explore the impact of HIE on families. There are two parts you can choose to […] ...
Let’s chat…
Hi all, just a little update for everyone. We are changing up our coffee mornings to new and improved ‘Let’s chat…’ sessions. We’ll be holding one session per month to […] ...
Craigavon mum opens up on baby daughter’s rare condition after ‘traumatic’ birth
Thanks to Jen, one of our wonderful Peer support volunteers for sharing her experience of H.I.E. and helping raise awareness. You can read the full article here. If you have […] ...
What’s on in April
There’s plenty going on in April, and of course we have H.I.E. Awareness Day on the 4th – raising awareness is important so that we can talk about H.I.E., help […] ...
Could you be a Peer Support Volunteer?
We are looking for individuals that may be interested in becoming one of our Peer Support Volunteers! Are you a parent or carer of a child that has experienced an […] ...
Episode 4: Peeps in a Podcast – The Loss Mum
A painful reality of H.I.E. is that sadly not all babies survive their injury. In this Peeps in a Podcast, Dani, known as The Loss Mum, shares her journey of […] ...
Episode 3: Neonatal Speech and Language (SALT) Q&A
“I work at the Royal Preston Hospital normally in my day job, and I work on the neonatal unit. They’re helping any of our babies that have any feeding and […] ...
Fancy joining our school project trial?
We’re trialling a project with a primary school who have been supporting Peeps, and would love your involvement! The idea is that we introduce “Peeps Pals” (think pen-pals!), where some […] ...
Why we now use H.I.E.
You may have noticed over recent months we have started to use H.I.E. (with the dots in between), instead of HIE. If you’re wondering why, it’s because we introduced the […] ...
Want to know more about how H.I.E. affects feeding?
So do we! Sarah Edney, a speech and language therapist and friend of Peeps, is doing a PhD on feeding outcomes following H.I.E. and what can help make feeding better […] ...
The Manchester 10km team is growing!
Fancy celebrating with Team Peeps at the Manchester 10km this May? The group of runners, joggers and walkers is growing, and we’d love you to be part of it too. […] ...
Meet Georgia
“Hey my name is Georgia, I’m 29 years old and I was born with H.I.E. in June 1994 resulted in pvl and quadriplegic spastic athetoid cerebral palsy and I need 24 […] ...
A date for your diary – 4th April
If you’ve got a new diary or calendar, or are getting organised for the year, make sure you pop the 4th April on as H.I.E. Awareness Day. There’ll be lots […] ...
Episode 2: Casey & Alfie’s Story
In our second podcast, we talk to Casey, mum to 6 year old Alfie, about their experience of H.I.E. Have a listen here. As always, if you feel you could […] ...
Episode 1: Introducing “Peeps in a Podcast”
Welcome to our very first podcast! Sarah Land, Co-Founder and Charity Manager of Peeps shares a little about her journey, and the reason why she and her husband Steve set […] ...
Peeps on Twitter
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@CHillemand can provide advice to Peeps families about making a compensation claim for their child (and themselves) as well as getting or challenging an EHCP. This os a free service for Peeps families so please contact her if you have questions.
A reminder @CMooreSolicitor, Partner has been holding free virtual legal clinics for @PeepsHie every Thursday this month. There is one more session available tomorrow (30 January 2025). To enquire with Charlotte contact her on charlotte.moore@clmedilaw.co.uk or 07388 949953.
Can you help improve data on avoidable brain injury around the time of birth? Maternity/obstetric/neonatal/paediatric colleagues please complete/retweet this survey https://ths.im/4iLI7kY
@MidwivesRCM @RCObsGyn @BAPM_Official @RCPCHtweets @NeonatalSociety @ScotNeoNurses @NNAUK1
