H.I.E. Conference – save the date!

H.I.E. Conference – save the date!

Grab your diaries and make sure you’re free on 14th May 2026 (plenty of time to plan ahead!).

We’ll be holding our first H.I.E. Conference, with the theme “Hear, Inform, Empower” – a huge opportunity to raise awareness and amplify voices, bringing together families, healthcare professionals, researchers, charities and those who support people affected by H.I.E.

Nicolas Hamilton will be joining us as a guest speaker, and we’ll be confirming the rest of the agenda soo.

The programme is already taking shape, and we’re excited to share more with you over the coming weeks! We’ve put together some questions and answers that might be helpful, which you can find by clicking here. Anything else don’t hesitate to ask.