Your voice matters
Jun
Your voice matters
Here at Peeps we always try and make sure that the parent voice is heard – our journeys, backgrounds, and feelings can all vary so much, and all are important.
We’ve been invited to take part in some training sessions with healthcare professionals and we’d love to include your voice.
Can you help, either by sending short video or a written quote, if you have received one of our Parent Packs – when did you get it, was this the right time, what did it mean to you, what would you like neonatal teams to know for example? (Of course if we could be doing things better, then let us know too!).
Please email info@peeps-hie.org, or message/WhatsApp 07838 197 945. By sharing your videos/quotes you’re giving Peeps permission to use in future training sessions – if you change your mind you can contact us and we will update.
Peeps on Twitter
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Thank you so much to those of you who took part in the Big Step Challenge across April, raising funds and awareness for H.I.E. support.
Over £1,000 has been donated so far - a huge amount that will go a long way in helping us reach more families touched by H.I.E.
Remember you
🌟 Have you been impacted by #HIE? 🌟
Your story matters to us!
Please share your #NHS experiences of #HIE in our quick survey 👇
https://redcap.idhs.ucl.ac.uk/surveys/?s=43CDKL9PC4YJMTM3
@UCLchildhealth @PeepsHie @HopeforHIE
Are you the parent of a baby who was diagnosed with Neonatal Encephalopathy? Please consider taking part in our survey looking to standardize terminology in this area https://tinyurl.com/DefineDelphiSurveyTest…
@BetsyPilon @PeepsHie @HopeforHIE
