Blogs - Peeps - HIE Awareness & Support


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Making a difference…

By Sarah Land      28th July 2020

One of our mums has kindly shared some feedback after we sourced and funded some specialised counselling for her. Thanks to the generosity of our supporters, and a brilliant grant from The National Lottery Community Fund, we are able to reach and hel ...

Good news for under 3s mobility support

By Sarah Land      22nd July 2020

“Family Fund Mobility Support aims to help families raising a disabled or seriously ill child under 3 years old to meet their mobility needs through a car leasing package for a limited period.” ( This is great news ...

Parent Story – Meet Albie

By Sarah Land      17th July 2020

Our story, Francesca and Macaulay ALBIE THOMAS MCGOWAN, 8lb 9oz, 18/12/19 Wednesday 18th December, 40+1, my waters had gone the day before and we were ready to be induced! 2nd baby, low risk pregnancy, we were soooo excited! Induction began, pessary ...

Wing Walk – 2021!

By Sarah Land      14th July 2020

As with many things, the Wing Walk for Peeps had to be postponed due to Covid, but Jade from Sign along with us, one of our Ambassadors, is sticking to her word and will be taking to the skies next year! She’s getting so close to her £1500 tar ...

Thank you Tesco!

By Sarah Land      29th June 2020

Huge thanks to Tesco and Groundwork UK for a £500 award from their Bags of Help Covid19 Communities fund. So many charities are feeling the strain at the moment, especially small charities like us. The impact on Covid19 is huge. Thanks to generosity ...

Mental Health and Wellbeing

By Sarah Land      26th June 2020

We all no doubt know the importance of looking after our mental health and wellbeing, but sometimes finding the time, energy, or money to put the theory in to practice can be tricky. We have listened to feedback from some of our HIE parents and are c ...

CVI Society

By Sarah Land      22nd June 2020

If any of our families have a little one with CVI (Cortical Visual Impairment), The CVI Society are looking for 2 more babies for their colour tent trial: ‘We need two more parents and babies for the dome trial then we can move forward with fut ...

Father’s Day

By Sarah Land      21st June 2020

Sending Father’s Day wishes to the Dad (or significant chap/chapess) in your life, whether with us or in our hearts. If anyone finds today emotional, for whatever reason, then please be kind to yourself, and reach out if you need a little suppo ...

Firefly Blogs

By Sarah Land      19th June 2020

We know that sometimes the HIE journey can feel lonely, but if you have time to grab a cuppa head over to Firefly to browse through the blogs that families have written. So many different conditions, circumstances and outcomes, the chances are you ...

Life in Lockdown

By Sarah Land      17th June 2020

Sarah, Peeps Charity Manager, shares an insight as to how life in lockdown is for their family. Whilst many restrictions are starting to be lifted, lots of families, including some of those affected by HIE are continuing to shield. They aren’t ...

Carers Week 8-14 June

By Sarah Land      9th June 2020

With the focus of carers’ week 2020 being “making caring visible” we wanted to shout out and recognise all those who, as a result of HIE, have carer responsibilities. You may be in employment, you may have had to leave work, you may ...

HIE in the Covid World

By Sarah Land      4th April 2020

By Sarah Jepson-Jones So on HIE awareness day in this crazy Covid world I am reflecting on what it means to us in lockdown. We have a gorgeous 4 yearr old with HIE – quadriplegic Cerebral Palsy, tube fed, non verbal and not independently mobile ...

Band of Brothers

By Sarah Land      26th February 2020

By Nicola Sheldon ...

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Peeps on Twitter

It’s nice to hear that our packs have been well received. As always, sending our love and best wishes to those who get them, especially at such a difficult time with COVID restrictions. Here if we can support in any way at all 💗

Helen Large@lively_helen

Huge thanks to @PeepsHie for continuing to provide us with these amazing goodie bags for our Mums and Dads! They absolutely love them!! (Posted with permission). @SarahFullwood1 @nfish83 @jbd_01 @Boffey1 @rachaelwhitting @StockportNHS 2

If you're supporting families affected by #HIE, please get in contact if you would like our free parent packs to give out. There's also a quick referral form (for you or them to complete) to ensure we can help support in the best way possible 👉

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