Parent panel feedback

Parent panel feedback

The first request for our new Parent Panel was to review the leaflet written for parents/carers at the start of their HIE journey. This leaflet usually goes in our parent packs that are given to families in neonatal units.

We listened to the feedback and made some changes, to improve the information and parent experience.

One big change as a result is that we are taking out pictures. Parents said that sometimes seeing other children (as gorgeous as they are!) can be a little overwhelming, and thinking about the future may be too much.

We also understand that some parents/carers may get comfort from reading other journeys, so we’re setting up a new dedicated section on our website for Family Stories. This means that the information is still there for those who want to read it.

If you would like to contribute and share you HIE journey, or part of your journey, we would love to hear from you. Please get in touch by emailing info@peeps-hie.org or messaging 07838197945.