News
A big “well done!” for the Big Step challengers!
Thank you so much to those of you who took part in the Big Step Challenge across April, raising funds and awareness for H.I.E. support. Over £1,000 has been donated so far – a huge amount that will go a long way in helping us reach more famili ...
Bendrigg 2024
This time last week we were arriving at The Bendrigg Trust in Kendal, for the second Peeps’ activity weekend. Despite some mixed weather, a great time was had by all – abseiling, rock climbing, indoor caving, archery, bikes and more! Ever ...
Research opportunity
Have you had a child with HIE? A UK research study is being done to explore the impact of HIE on families. There are two parts you can choose to be involved in if you are a parent whose child was cooled in the UK 1) An anonymous surve ...
Let’s chat…
Hi all, just a little update for everyone. We are changing up our coffee mornings to new and improved ‘Let’s chat…’ sessions. We’ll be holding one session per month to begin with, for an hour, some in the day and some in an evening, to offe ...
Craigavon mum opens up on baby daughter’s rare condition after ‘traumatic’ birth
Thanks to Jen, one of our wonderful Peer support volunteers for sharing her experience of H.I.E. and helping raise awareness. You can read the full article here. If you have been touched by H.I.E. and could benefit from a little extra support or want ...
What’s on in April
There’s plenty going on in April, and of course we have H.I.E. Awareness Day on the 4th – raising awareness is important so that we can talk about H.I.E., help educate others and reach those who may benefit from a little support. IfR ...
Could you be a Peer Support Volunteer?
We are looking for individuals that may be interested in becoming one of our Peer Support Volunteers! Are you a parent or carer of a child that has experienced an H.I.E. event? We would love to hear from you if your journey has focused around a H.I.E ...
Episode 4: Peeps in a Podcast – The Loss Mum
A painful reality of H.I.E. is that sadly not all babies survive their injury. In this Peeps in a Podcast, Dani, known as The Loss Mum, shares her journey of love and loss, and talks about her precious daughter Olivia Grace. You can listen to the pod ...
Episode 3: Neonatal Speech and Language (SALT) Q&A
“I work at the Royal Preston Hospital normally in my day job, and I work on the neonatal unit. They’re helping any of our babies that have any feeding and swallowing problems…I’m doing a full time PhD at the at Newcastle Unive ...
Fancy joining our school project trial?
We’re trialling a project with a primary school who have been supporting Peeps, and would love your involvement! The idea is that we introduce “Peeps Pals” (think pen-pals!), where some of our HIEroes can share a little bit about th ...
Why we now use H.I.E.
You may have noticed over recent months we have started to use H.I.E. (with the dots in between), instead of HIE. If you’re wondering why, it’s because we introduced the Recite Me accessibility toolbar on our website. It’s brilliant ...
Want to know more about how H.I.E. affects feeding?
So do we! Sarah Edney, a speech and language therapist and friend of Peeps, is doing a PhD on feeding outcomes following H.I.E. and what can help make feeding better and easier for families. The study is called ‘Factors Influencing Feeding Ou ...
The Manchester 10km team is growing!
Fancy celebrating with Team Peeps at the Manchester 10km this May? The group of runners, joggers and walkers is growing, and we’d love you to be part of it too. Don’t worry about going for a personal best, or being the fastest – it& ...
Meet Georgia
“Hey my name is Georgia, I’m 29 years old and I was born with H.I.E. in June 1994 resulted in pvl and quadriplegic spastic athetoid cerebral palsy and I need 24 hour support for everything that is provided by my parents and care team. I love mus ...
A date for your diary – 4th April
If you’ve got a new diary or calendar, or are getting organised for the year, make sure you pop the 4th April on as H.I.E. Awareness Day. There’ll be lots of easy (and free!) ways to get involved, and you can make such a big difference. H.I.E. is ...
Episode 2: Casey & Alfie’s Story
In our second podcast, we talk to Casey, mum to 6 year old Alfie, about their experience of H.I.E. Have a listen here. As always, if you feel you could benefit from a little extra support, or want to chat through anything, please don’t hesitate ...
Episode 1: Introducing “Peeps in a Podcast”
Welcome to our very first podcast! Sarah Land, Co-Founder and Charity Manager of Peeps shares a little about her journey, and the reason why she and her husband Steve set up Peeps. You can have a listen by clicking here. ...
What’s on in December
There’s plenty going on if you’re feeling festive! All our activities are just for H.I.E. families, and free of charge. Check out our events page for details and to register your places. We do understand that not everyone will be, or feel ...
New for 2024 – the Peeps’ Book Club
One of our new initiatives for 2024, based on conversations and feedback from families, is an online book club. Promoting self care, and a chance to connect with other H.I.E. parents, grandparents and carers. If you’d like to be kept up to date ...
Our Coffee Pot is up and running!
Many H.I.E. families will know just how hard a lengthy or sudden hospital stay can be. Worrying about your child and helping them get better is priority, and it can feel incredibly lonely as the world outside carries on as usual. Our “coffee po ...