Meet Bohen... | Peeps

Meet Bohen…

Meet Bohen…


By Keira

I wanted to share Bohen’s story.

So, his story so far is positive, we are very grateful for the outcome. 

Bohen was born on the 03/11/20. After numerous times going up to the hospital and being denied I was in labour to him being here within 50 minutes on the last visit. 

He was born struggling to breathe, multiple seizures and very purple. It took the hospital 12 mins to resuscitate him, we didn’t see Bohen for 5 1/2 hours after birth. We now know that he was very hard to intubate and put on a ventilator. Until the consultant came in and said unfortunately, we don’t know if he will survive, have brain damage or be completely fine. But he needs to be cooled and warmed to protect any further brain damage.  

We spent 5 days in NICU. He was the biggest, sickest baby in there. Then going back to the original hospital to have his MRI Scan showing no damages to the brain. But told he may not do things other babies do or if he does this may be delayed. Seeing the consultant, he said so far, he is doing everything as he should do at 6 weeks. Seeing his physio therapist and him smashing all their targets. Crawling, walking , running and now talking as much as he can. He was signed off early from the consultant and physio as he was smashing everything. They were so pleased! 

We have a happy, loving , talkative little 17 month old . And after a rocky start , the scares, the unknown and finding this amazing charity (which you are) in the support has helped us in many more ways than we thought ! 

Bohen is doing just amazing. And I want to share how positive his outcome has been.

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A little light listening for a Saturday - a beautiful song that was gifted to Peeps by Liz explaining what H.I.E. is and sharing just some of the gorgeous families we have the privilege of being alongside #HeardOfHIE 🌻

#Neonatale #seizures and #outcomes!
- @HIE the most frequent cause of seizures, but prognosis of neonatal-onset #epilepsies was worse.
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