Blogs
Firefly Blogs
19th June 2020
We know that sometimes the HIE journey can feel lonely, but if you have time to grab a cuppa head over to Firefly to browse through the blogs that families have written. So many different conditions, circumstances and outcomes, the chances are you ...
Life in Lockdown
17th June 2020
Sarah, Peeps Charity Manager, shares an insight as to how life in lockdown is for their family. Whilst many restrictions are starting to be lifted, lots of families, including some of those affected by HIE are continuing to shield. They aren’t ...
HIE in the Covid World
4th April 2020
By Sarah Jepson-Jones So on HIE awareness day in this crazy Covid world I am reflecting on what it means to us in lockdown. We have a gorgeous 4 yearr old with HIE – quadriplegic Cerebral Palsy, tube fed, non verbal and not independently mobile ...