Neonatal care & New Families Archives | Peeps

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A world first…trials in Cooling in Mild H.I.E. (COMET)

 24th May 2024

Yesterday Peeps attended the launch of the COMET trial in London. This trial will look at whether there are benefits to cooling (therapeutic hypothermia) for babies who have a diagnosis of mild H.I.E. Up to now, cooling has been a recognised treatmen ...

Mental Health Awareness Week

 13th May 2024

As Mental Health Awareness week starts, today has also seen a huge focus (rightly so) around birth trauma in the news and on social media.We just want to gently extend our support to you, if or when it is ever needed.We may not have a magic wand to c ...

A big “well done!” for the Big Step challengers!

 30th April 2024

Thank you so much to those of you who took part in the Big Step Challenge across April, raising funds and awareness for H.I.E. support. Over £1,000 has been donated so far – a huge amount that will go a long way in helping us reach more famili ...

Bendrigg 2024

 19th April 2024

This time last week we were arriving at The Bendrigg Trust in Kendal, for the second Peeps’ activity weekend. Despite some mixed weather, a great time was had by all – abseiling, rock climbing, indoor caving, archery, bikes and more! Ever ...

Research opportunity

 16th April 2024

Have you had a child with HIE? A UK research study is being done to explore the impact of HIE on families. There are two parts you can choose to be involved in if you are a parent whose child was cooled in the UK 1)         An anonymous surve ...

Let’s chat…

 5th April 2024

Hi all, just a little update for everyone. We are changing up our coffee mornings to new and improved ‘Let’s chat…’ sessions. We’ll be holding one session per month to begin with, for an hour, some in the day and some in an evening, to offe ...

Craigavon mum opens up on baby daughter’s rare condition after ‘traumatic’ birth

 3rd April 2024

Thanks to Jen, one of our wonderful Peer support volunteers for sharing her experience of H.I.E. and helping raise awareness. You can read the full article here. If you have been touched by H.I.E. and could benefit from a little extra support or want ...

What’s on in April

 30th March 2024

There’s plenty going on in April, and of course we have H.I.E. Awareness Day on the 4th  – raising awareness is important so that we can talk about H.I.E., help educate others and reach those who may benefit from a little support. IfR ...

Could you be a Peer Support Volunteer?

 13th March 2024

We are looking for individuals that may be interested in becoming one of our Peer Support Volunteers! Are you a parent or carer of a child that has experienced an H.I.E. event? We would love to hear from you if your journey has focused around a H.I.E ...

Episode 4: Peeps in a Podcast – The Loss Mum

 28th February 2024

A painful reality of H.I.E. is that sadly not all babies survive their injury. In this Peeps in a Podcast, Dani, known as The Loss Mum, shares her journey of love and loss, and talks about her precious daughter Olivia Grace. You can listen to the pod ...

Episode 3: Neonatal Speech and Language (SALT) Q&A

 28th February 2024

“I work at the Royal Preston Hospital normally in my day job, and I work on the neonatal unit. They’re helping any of our babies that have any feeding and swallowing problems…I’m doing a full time PhD at the at Newcastle Unive ...

Fancy joining our school project trial?

 8th February 2024

We’re trialling a project with a primary school who have been supporting Peeps, and would love your involvement! The idea is that we introduce “Peeps Pals” (think pen-pals!), where some of our HIEroes can share a little bit about th ...

Why we now use H.I.E.

 5th February 2024

You may have noticed over recent months we have started to use H.I.E. (with the dots in between), instead of HIE. If you’re wondering why, it’s because we introduced the Recite Me accessibility toolbar on our website. It’s brilliant ...

Want to know more about how H.I.E. affects feeding?

 21st January 2024

So do we!  Sarah Edney, a speech and language therapist and friend of Peeps, is doing a PhD on feeding outcomes following H.I.E. and what can help make feeding better and easier for families. The study is called ‘Factors Influencing Feeding Ou ...

The Manchester 10km team is growing!

 11th January 2024

Fancy celebrating with Team Peeps at the Manchester 10km this May? The group of runners, joggers and walkers is growing, and we’d love you to be part of it too. Don’t worry about going for a personal best, or being the fastest – it& ...

Meet Georgia

 5th January 2024

“Hey my name is Georgia, I’m 29 years old and I was born with H.I.E. in June 1994 resulted in pvl and quadriplegic spastic athetoid cerebral palsy and I need 24 hour support for everything that is provided by my parents and care team. I love mus ...

A date for your diary – 4th April

 4th January 2024

If you’ve got a new diary or calendar, or are getting organised for the year, make sure you pop the 4th April on as H.I.E. Awareness Day. There’ll be lots of easy (and free!) ways to get involved, and you can make such a big difference. H.I.E. is ...

Episode 2: Casey & Alfie’s Story

 1st January 2024

In our second podcast, we talk to Casey, mum to 6 year old Alfie, about their experience of H.I.E. Have a listen here. As always, if you feel you could benefit from a little extra support, or want to chat through anything, please don’t hesitate ...

Episode 1: Introducing “Peeps in a Podcast”

 6th December 2023

Welcome to our very first podcast! Sarah Land, Co-Founder and Charity Manager of Peeps shares a little about her journey, and the reason why she and her husband Steve set up Peeps. You can have a listen by clicking here. ...

What’s on in December

 27th November 2023

There’s plenty going on if you’re feeling festive! All our activities are just for H.I.E. families, and free of charge. Check out our events page for details and to register your places. We do understand that not everyone will be, or feel ...

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